Monday 11 July 2016

11.7.16

Over 2 weeks since my last blog. You could quite rightly accuse me of being negligent.
So why not, i hear you shout!
Ive been busy. Out and about. Having a fab time. Coffee and cakes. Prosecco. Lovely walks along the beach........if only.
I have done nothing of note. My main mission in life at the mo is to recover from the treatment. Its even slower than i thought. Maybe I'm trying to run before i can walk, after all, it took me a good year to get over the last lot of chemo, and this recent stuff was a real humdinger.
I have attempted to go out. Ive been to tesco express, and the vets, twice, and the pharmacy. I must say how boring it is being home all day watching tv and playing on my laptop.
So what can i tell you?
Im day 34 today.
I received a lovely appointment from Sammie, the nurse specialist. I thought she was nice......now I'm not so sure. An appointment for a bone marrow biopsy!!! And on my birthday!!! Thats apparently day 100 +1. Its to check my bone marrow, and for statistics! Sod that!
I have spoken to Clare, the nice nurse specialist (i don't mean that Sammie!) this morning and she has talked through a few things with me. If i talk to Dr Jack he may let me off the biopsy. I think with my brand of charm, he may. But the silver lining is, if i do have it, i can have some Midazolam (a sedative) to knock me out. And i do love Midazolam. Its like being on holiday, laying on a sunbed, in the warmth with the waves lapping on the shore. It does mean a cannula, but thats nothing compared to a bone marrow biopsy whilst you're conscious.
Other than that, i asked her why i still have nausea, retching weekly (how flipping odd!), headaches, indigestion to die for, problems with opening my mouth, and other stuff,  etc.  She thinks I'm just taking a while to recover, its unusual to still be like this, but it has been known. I just need to settle down! Does anyone have a magic wand?
My worry is, all the fun things i have booked into my diary. Im hoping i will be able to enjoy them as they  arrive on my social calendar. As long as i carry a bucket, tissues, meds, an oxygen tank (exaggeration used in excess there), a blow up bed, digestives (for anti sickness), a fireman (i think this is a necessity), ice cold water, and spaghetti hoops, i'll be fine.